Fistula Journeys

Submit a Patient Story
Become a part of this initiative by submitting a patient story. {Learn how.}
The Renal Network, Inc. is launching a new peer-to-peer educational initiative called Fistula Journeys. This initiative aims to help dialysis patients consider their vascular access options by reading patient stories that address the choice of a fistula. Each month, Fistula Journeys will feature a new story.
Through real-life situations, Fistula Journeys show how other patients have a) selected their vascular access, b) identified coping mechanisms that helped along the way and, c) discovered how their choices affected both their personal lives and their dialysis outcomes.
Out of the Blue
Tyrone Barnett (Pictured left)
has been on dialysis since August 1996 and had an AV fistula placed that sam month.
[Read his story, Out of the Blue PDF, 609Kb; posted August, 2011]
No Clots for Me
Quinnroy Maurice Edwards (Pictured left:
and his wife of 16 years, Rhonda) has been on dialysis since 1991 and had an AV fistula placed in 1996.
[Read his story, No Clots for Me PDF, 608Kb; posted July, 2011]
My Lifeline
Diana Headlee-Bell(picture on the left ) is a member of The Renal Network Board of Trustees and ESRD Network 4 Patient Advisory Committee.
[Read her story, My Lifeline PDF, 601Kb; posted June, 2011]
What Choice Do I Make?
Jim Dineen (picture on the left ) is a member of The Renal Network Patient Leadership Committee and Medical Review Board. Jim has been a kidney patient for over ten years. Jim is also a PEPP Speaker and WeKAN member at Renal Support Network.
[Read his story, What Choice Do I Make? PDF, 575Kb; posted May, 2011]
My Fistula and Me
Dadi Ding (picture on the left with her husband) is a nurse and works as the Renal Transplant Coordinator of Loyola University Transplant Program. Dadi is also a member of The Renal Network Patient Leadership Committee. Dadi has been a kidney patient since 1982.
[Read her story, My Fistula and Me PDF, 611Kb; posted April, 2011]
-- PROJECT MANAGER Position Posting --
The Project Manager of ESRD Network 4, located in Pittsburgh, Pennsylvania, will direct staff members in the ESRD Network 4 office in Pittsburgh, and report to the Executive Director of The Renal Network, Inc., in Indianapolis, Indiana. The Renal Network contracts with the Centers for Medicare and Medicaid Services (CMS) to oversee quality initiatives for chronic dialysis units in ESRD Network 4 (Pennsylvania and Delaware), ESRD Network 9 (Indiana, Ohio and Kentucky), and ESRD Network 10 (Illinois).
ESRD Network 4 is responsible for quality improvement in 272 outpatient dialysis units and 19 transplant centers in Pennsylvania and Delaware. The Project Manager will work directly with representatives of the Centers for Medicare and Medicaid Services (CMS) to ensure that the CMS contract deliverables are met on a timely basis and that quality goals are achieved. The Project Manager ensures that requirements for the CMS-ESRD Network 4 contract are maintained, and is responsible for financial and program oversight. The Project Manager supervises a staff consisting of quality of care, data, and ESRD beneficiary relations managers as well as support staff. The position regularly interacts with and takes direction from the Board of Trustees, a Medical Review Board and various specialty committees of The Renal Network focused on improving the quality of end-stage renal disease care.
Applicants should have a background in nephrology and/or end-stage renal disease, a working knowledge of quality improvement principles, and management experience. An advanced degree in a health care related field is required. Knowledge of the federal End-Stage Renal Disease Network program and/or the Quality Improvement Organization Program is desired. Applicants should send an introductory letter and resume or curriculum vitae to: info@nw10.esrd.net.
-- CANNULATION CAMP --
Thursday, May 3, 2012
Willow Grove, PA
Giant Super Food Store
315 York Road
Willow Grove, PA 19090
(Conference room is located on the 2nd floor at the Community Center)
To register, download Brochure (format: PDF, size: 268 kb) or call 215-887-1122.



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